KMID : 0894920170170030059
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Journal of the Korean Association for Persons with Autism 2017 Volume.17 No. 3 p.59 ~ p.90
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Daily Life of Adults with Autism and Their Service Experience in Community Welfare Agencies: Focus Group Interviews with Mothers of Adult Children with Autism
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Seo Hong-Lan
Jung So-Yon Kim Jung-In
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Abstract
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This study was designed to identify daily life of adults with autism and their service experience in community welfare agencies, and to provide useful information for development of the programs suitable for the population and their life cycle. Data were collected through four focus group interviews with mothers of adult children who had autism spectrum disorders. A thematic analysis was carried out to describe and interpret the participants¡¯ opinions and observations regarding the research topics. Several themes were derived from data analysis: Three sub-themes related to the daily life of adult with autism (meaningful life utilizing internal and external resources, boring life without an exit, future-oriented life with little progress and growth); two sub-themes with regard to service experience (positive changes caused by service use, obstacles to program participation); and two sub-themes regarding the needs toward community-based services (age-appropriate services; service management and delivery). Based on the study results, micro, mezzo, and macro level strategies were suggested for service and program development suitable for life cycle of adults with autism, including vocational rehabilitation, training for independent living skills, social skills training, and lifelong education.
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KEYWORD
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adults with autism, community welfare services, focus group interview(FGI), thematic analysis
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